Our Trustees

As Larsen's mum, I have seen first

hand the experience of a child facing

a brain tumour diagnosis. I have

seen, and felt, and grieved for a lost

childhood from the moment his

diagnosis was confirmed. There is no

child-friendly treatment for brain

tumours, no 'calpol' chemo for

children. I started Larsen's Pride to

fight for this lost childhood and to

acknowledge the experience of the

youngest patients. So, whether it is

through the comfort of one of our

soft toys, or by raising funds to bring childhood back into treatment schedules, Larsen's Pride

exists to improve the lives of the

youngest brain tumor patients."

 ‘I wanted to be more involved with Larsen’s Pride after talking with Holly about the projects the charity planned to work on. As a Play Specialist working with children and families in radiotherapy they all seemed very exciting and linked in well with my role. I know that the these projects could support so many families including those I work with’  

 We are absolutely thrilled to welcome Sharna onto our board of trustees. As well as experience working on the Head Smart campaign and with the Children's Brain Tumour Research Centre at QMC, Sharna is passionate about improving diagnosis of paediatric brain tumours and delivering child centred care. 

 "I want to be a trustee because I want to help Holly and Lyndon create something amazing in Larsen's name and also because I lost my mum last year to bowel cancer. My mum was a nurse and devoted her life to helping others and I would like to try to do the same." 

'Becoming a trustee for Larsen's Pride was a decision fuelled by a deep sense of compassion and dedication. Experiencing the profound challenges faced by children with brain tumours has deeply moved me. I strongly believe that every child deserves a chance at a healthy and fulfilling future, unburdened by the weight of such a challenging condition. As a trustee, I am dedicated to contributing my time, skills, and resources to support the organization's noble mission, fostering hope, raising awareness, and advancing vital research in the fight against children's brain tumours.'

"As Larsen's dad, firstly I wanted to

do something positive and

something he would have valued

and appreciated. He loved all of his

big cats (and real big cats too) and

they provided lots of comfort to

him. Secondly, children are going

through what Larsen experienced

every day - childhood cancer isn't

rare. So, I wanted to do something

to improve the lives of children

going through a terrible time, like

Larsen did. There is very little

support for children and hopefully

that's a gap Larsen's Pride can fill.”

'I had been considering a charity Trustee role for a while when I came across Larsen's Pride and was deeply moved by Larsen's story and the way that his family are so actively working to help support others going through something similar.  I love the idea of providing children with something comforting during such a difficult period and that this was taken directly from Larsen's experience.  Larsen's Pride does so much more but it was this feature of their work that really grabbed my attention and I am incredibly proud to support them as a Finance Trustee.'

'I bring experience in professional fundraising and events to the trustee board. My background in non-profit marketing and campaigns, coupled with my full-time role at a national learning disability charity in London. I am dedicated to helping Larsen's Pride achieve its ambitious goals and reach new heights and spread to message and work for as many children who need it.'