"I wanted to become involved in Larsen's Pride for a few reasons. One, because I knew (and still know) so little about childhood brain cancer - I wanted to help other people learn more so more can be done to devise kinder treatments. I also wanted to help Holly and Lyndon do something tangible in Larsen's memory."
As Larsen's mum, I have seen first
hand the experience of a child facing
a brain tumour diagnosis. I have
seen, and felt, and grieved for a lost
childhood from the moment his
diagnosis was confirmed. There is no
child-friendly treatment for brain
tumours, no 'calpol' chemo for
children. I started Larsen's Pride to
fight for this lost childhood and to
acknowledge the experience of the
youngest patients. So, whether it is
through the comfort of one of our
soft toys, or by raising funds to bring childhood back into treatment schedules, Larsen's Pride
exists to improve the lives of the
youngest brain tumor patients."
“Holly shared Larsen’s journey with me and I found it heartbreaking, inspiring and insightful at the same time. The family's experience has made me want to learn more and contribute to a difference being made through the charity for children touched by brain tumours, the treatment and research.”
‘I wanted to be more involved with Larsen’s Pride after talking with Holly about the projects the charity planned to work on. As a Play Specialist working with children and families in radiotherapy they all seemed very exciting and linked in well with my role. I know that the these projects could support so many families including those I work with’
We are absolutely thrilled to welcome Sharna onto our board of trustees. As well as experience working on the Head Smart campaign and with the Children's Brain Tumour Research Centre at QMC, Sharna is passionate about improving diagnosis of paediatric brain tumours and delivering child centred care.
"I want to be a trustee because I want to help Holly and Lyndon create something amazing in Larsen's name and also because I lost my mum last year to bowel cancer. My mum was a nurse and devoted her life to helping others and I would like to try to do the same."
Becoming a trustee for Larsen's Pride was a decision fuelled by a deep sense of compassion and dedication. Experiencing the profound challenges faced by children with brain tumours has deeply moved me. I strongly believe that every child deserves a chance at a healthy and fulfilling future, unburdened by the weight of such a challenging condition. As a trustee, I am dedicated to contributing my time, skills, and resources to support the organization's noble mission, fostering hope, raising awareness, and advancing vital research in the fight against children's brain tumours.
I came across Larsen's Pride via social media and, as a Therapeutic Radiographer, Larsen's story and the overall aim of the charity resonated with me. In my career, I have seen first-hand the impact that treatment and general anaesthesia can have on the day-to-day lives of children. On speaking with Holly and Lyndon, their passion for child-centred care was evident, and something I am also passionate about, so the decision to join Larsen's Pride was an easy one. I want to help raise awareness about paediatric brain tumours, and contribute to the ongoing amazing work that Larsen's Pride is doing to improve the lives of the children affected by such diagnoses.
"As Larsen's dad, firstly I wanted to
do something positive and
something he would have valued
and appreciated. He loved all of his
big cats (and real big cats too) and
they provided lots of comfort to
him. Secondly, children are going
through what Larsen experienced
every day - childhood cancer isn't
rare. So, I wanted to do something
to improve the lives of children
going through a terrible time, like
Larsen did. There is very little
support for children and hopefully
that's a gap Larsen's Pride can fill.”
Registered in England and Wales with the Charity Commission. Reg No: 1197746. More information at https://register-of-charities.charitycommission.gov.uk/charity-search/-/charity-details/5192457/charity-overview